Badminton Tournament to Benefit Friedreich’s Ataxia Research
Saint-Avé Badminton Club Hosts Charity Event for Rare Genetic Disorder
The Saint-Avé Badminton Club is set to host a charity badminton tournament on May 18, with all proceeds benefiting the French Association for Friedreich’s Ataxia (AFAF). the “Tim’Badminton” tournament aims to raise awareness and funds for research into this rare and debilitating genetic disease.
Local Club Rallies Support After Member’s Son diagnosed
The initiative was spearheaded by the club president, who, after learning about Friedreich’s Ataxia from Emmanuel, a club member whose son Timothée has the condition, was moved to action. “It was very significant to me to do a charity tournament for manny years,” the president stated. ”During the Telethon tournament, Emmanuel told us about the disease affecting his son. We decided to mobilize for him!”
Understanding Friedreich’s Ataxia: A Rare Genetic Disorder
Friedreich’s Ataxia is a rare, progressive genetic disease affecting approximately 1,500 people in France. Timothée, a 20-year-old from Avé, was diagnosed after experiencing falls and clumsiness in his youth. His mother, Stéphanie, explained the difficulty in initially diagnosing the condition: “At the hospital, no one knew this disease.” The disorder results from a faulty gene that leads to insufficient production of frataxin,a protein crucial for cell function. This deficiency causes premature cell death, primarily affecting the nervous system and heart.
Hope Through Research: Advancements Offer promise
Currently,there is no cure for Friedreich’s Ataxia,but research is rapidly advancing,fueling hope for future treatments.
Everyone Can Participate in Tim’Babminton
The “Tim’Babminton” tournament welcomes players of all skill levels. Kally, one of the association’s communicators, emphasizes the inclusive nature of the event: “We hope to welcome as many people as possible to this charity tournament. The event, which will take place in a friendly and supportive atmosphere, is open to everyone, badminton player or not! All you need is a badminton racket (available for loan on site if needed) and sports attire.”
Teams of four can register for one of the following time slots: 10:00 AM - 12:30 PM, 1:00 PM – 3:30 PM, or 4:00 PM – 6:30 PM.
Community Support Already Strong
The club president noted the strong community support, with teams from local businesses, including the Union of Entrepreneurs, Crédit Agricole, and the Business Club, already registered to participate.
Emmanuel and Stéphanie will be present throughout the day to raise awareness about Friedreich’s Ataxia and share their experiences.
Event Details:
The Tim’Badminton tournament will be held on May 18th at the Pierre Le Nouail Hall, starting at 10:00 AM. Registration is required by May 16th via SMS at 06 32 94 32 77, specifying the preferred time slot. The entry fee is €5 per player.Food and beverages will be available on site.
Donations to AFAF can be made online via the essasduvolantsaintave Facebook page or directly through the AFAF website: afaf.asso.fr. For further inquiries, contact contact@afaf.asso.fr.
Is there a minimum age requirement to participate in the tournament?
Badminton Tournament to Benefit Friedreich’s Ataxia Research: Q&A
Frequently Asked questions About the “Tim’Babminton” Tournament
This Q&A section provides additional details about the badminton tournament,”Tim’Babminton,” to benefit Friedreich’s Ataxia research.
Q: What is Friedreich’s Ataxia (FA)?
A: FA is a rare, progressive genetic disorder that affects the nervous system and heart. It’s caused by a faulty gene that leads to insufficient production of frataxin, a protein vital for cell function. This deficiency results in premature cell death, leading to various symptoms like loss of coordination, muscle weakness, and heart problems.Approximately 1,500 people in France are affected.
Q: Why is this tournament being organized?
A: The Saint-Avé Badminton Club is hosting “Tim’Babminton” to raise awareness and funds for research into Friedreich’s Ataxia. The initiative was spearheaded by the club president after learning about the condition from a club member whose son, Timothée, has FA.
Q: Who can participate in the tournament?
A: The tournament welcomes players of all skill levels,from beginners to experienced badminton enthusiasts. the event emphasizes a friendly and supportive atmosphere. You don’t need to be a badminton player to participate; a racket (loaned on site if needed) and sports attire are all you need.
Q: When and where is the tournament taking place?
A: The “Tim’Babminton” tournament will be held on May 18th at the Pierre Le Nouail Hall, starting at 10:00 AM.
Q: What are the registration details?
A: Registration is required by May 16th via SMS at 06 32 94 32 77, specifying your preferred time slot (10:00 AM – 12:30 PM, 1:00 PM – 3:30 PM, or 4:00 PM – 6:30 PM).The entry fee is €5 per player.
Q: How can I donate if I can’t attend?
A: Donations to the AFAF can be made online via the essasduvolantsaintave Facebook page or directly through the AFAF website: afaf.asso.fr.
Q: What additional activities are planned for the event?
A: Emmanuel and Stéphanie, whose son has FA, will be present to share their experiences and raise awareness about the disease. Food and beverages will also be available on site.
Q: What is the current state of FA research?
A: Currently, there is no cure for Friedreich’s Ataxia, but research is rapidly advancing, offering hope for future treatments. This tournament directly contributes to these crucial research efforts.
by participating in “Tim’Babminton” or donating, you can definitely help support research and raise awareness for Friedreich’s Ataxia. Every contribution makes a difference in the lives of those affected by this rare disease. Register today and become part of the solution!
